Table 2

Resource utilisation per capita (assessment of 3-month interval before visit)

Visit (number of patients investigated at visit)Baseline (349)6 months (225)12 months (219)FU year 2 (145)FU year 3 (125)FU year 4 (78)FU year 5 (54)
Patients (percentage) with outpatient visits264 (76%)176 (78%)171 (78%)120 (82%)89 (71%)55 (71%)33 (61%)
 Median (range) of general practitioner visits2 (1–14)2 (1–6)2 (1–7)2 (1–8)2 (1–8)2 (1–4)3 (1–7)
 Median (range) of paediatrician visits2 (1–15)2 (1–12)2 (1–10)2 (1–12)2 (1–24)2 (1–5)2 (1–10)
 Median (range) of internal specialist visits2 (1–8)1 (1–4)1 (1–8)1 (1–15)1 (1–12)1 (1–8)1 (1–5)
 Median (range) of other physician visits2 (1–28)2 (1–45)2 (1–14)2 (1–15)1 (1–7)2 (1–13)2 (1–23)
Patients (percentage) with healthcare professional visits138 (40%)68 (30%)71 (32%)63 (43%)45 (36%)33 (42%)29 (54%)
 Median (range) physiotherapist visits8 (1–84)12 (1–90)11 (1–60)12 (1–48)12 (1–32)8 (1–24)7 (1–24)
 Median (range) psychologist visits3 (1–30)4 (1–28)10 (1–24)5 (1–12)5 (1–12)6 (3–7)7 (1–12)
 Median (range) other specialist visits1 (1)1 (1–2)2 (1–8)3 (1–13)4 (1–16)7 (1–25)12 (1–31)
Patients (percentage) with hospital admissions216 (62%)79 (35%)57 (26%)30 (21%)3 (2%)11 (14%)12 (22%)
 Median (range) days hospital admission (including ICU)17 (1–90)5 (1–90)4 (1–30)5 (2–43)3 (1–10)3 (1–35)3 (1–35)
 Median (range) days at ICU7 (1–90)3 (1–27)3 (1–8)3 (1–34)1 (1–4)3 (1–4)3 (3)
 Median (range) days of inpatient accompaniment14 (1–90)5 (1–64)4 (1–28)5 (1–35)3 (1–20)3 (1–10)7 (2–30)
Patient (percentage) with admission to rehabilitation12 (4%)11 (5%)2 (1%)7 (5%)5 (4%)3 (4%)1 (2%)
 Median (range) days as outpatient3 (1–13)2 (1–30)3 (3)6 (2–20)3 (1–5)10 (10)2 (2)
 Median (range) days as inpatient20 (2–65)28 (3–30)36 (27–45)28 (2–42)28 (21–35)28 (28)
 Median (range) days of inpatient accompaniment6 (1–65)28 (3–28)27 (27)28 (3–34)18 (5–28)28 (28)
Patients (percentage) with additional care requirements119 (34%)59 (26%)55 (25%)31 (21%)29 (23%)13 (17%)1 (2%)
 Median (range) hours per days of professional care12 (1–24)16 (1–24)8 (3–24)7 (3–24)10 (2–24)8 (6–10)8 (7–8)
 Median (range) hours per day of informal care5 (1–16)7 (1–16)4 (1–16)4 (1–16)3 (1–16)3 (1–12)3 (1–16)
Patients (percentage) with productivity loss due to illness153 (44%)67 (29%)68 (31%)58 (40%)30 (24%)22 (28%)18 (33%)
 Median (range) hours per week15 (2–40)15 (1–40)12 (1–40)17 (1–40)11 (2–40)16 (10–40)15 (2–40)
Patients (percentage) with medical aids and devices234 (67%)152 (68%)151 (69%)102 (70%)80 (64%)46 (59%)36 (67%)
 Patients (percentage) with long-term oxygen therapy155 (66%)81 (53%)91 (60%)61 (60%)37 (46%)22 (48%)18 (50%)
 Patients (percentage) with non-invasive ventilation29 (12%)10 (7%)11 (7%)6 (5%)1 (1%)2 (11%)1 (3%)
 Patients (percentage) with invasive ventilation13 (5%)2 (1%)2 (1%)3 (3%)2 (3%)
 Patients (percentage) with artificial feeding43 (18%)25 (16%)31 (21%)16 (16%)10 (13%)8 (17%)7 (19%)
 Patients (percentage) with inhalation device97 (41%)78 (51%)82 (54%)61 (60%)61 (76%)31 (67%)22 (8861%)
 Patients (percentage) with pulse oximeter107 (45%)85 (56%)86 (57%)63 (42%)53 (66%)27 (59%)20 (56%)
 Patients (percentage) with other medical devices43 (18%)25 (16%)26 (17%)23 (23%)9 (11%)11 (24%)9 (25%)
Patients (percentage) receiving medication234 (67%)134 (60%)127 (58%)78 (54%)66 (53%)31 (40%)23 (43%)
 Patients (percentage) receiving systemic steroids107 (46%)52 (39%)35 (28%)21 (27%)17 (26%)12 (39%)7 (30%)
 Patients (percentage) receiving macrolides58 (24%)29 (22%)33 (26%)13 (17%)12 (18%)8 (26%)3 (13%)
 Patients (percentage) receiving hydroxychloroquine35 (15%)32 (24%)30 (24%)12 (15%)8 (12%)5 (16%)4 (17%)
 Patients (percentage) receiving other medication69 (29%)33 (24%)32 (25%)28 (36%)17 (26%)14 (45%)8 (35%)
Median (range) of travel distance in km7 (1–822)9 (1–512)16 (1–1539)25 (1–838)34 (1–894)28 (1–957)32 (1–915)
  • FU, follow up; ICU, intensive care unit.