Table 1

Characteristics of respondents of the identifying priorities and prioritisation questionnaires

CharacteristicStage 1 Identifying priorities questionnaire (n=196)Stage 3 Prioritisation questionnaire (n=261)
Category of respondent
 Person with PF152 (78)134 (51)
 Caregiver of person with PF32 (16)38 (15)
 Healthcare professionals/researchers12 (6)89 (34)
Gender
 Male91 (46)124 (48)
 Female98 (50)110 (42)
 Not reported7 (4)27 (10)
Current age, years (people with PF and caregivers) (n=184) (n=172)
 ≤549 (5)10 (6)
 55–6419 (10)12 (7)
 65–7482 (45)74 (43)
 75–8461 (33)55 (32)
 ≥8510 (5)12 (7)
 Not reported3 (2)9 (5)
Residence (people with PF and caregivers) (n=184) (n=172)
 ACT 3 (2)3 (2)
 NSW60 (33)71 (41)
 NT 3 (2)2 (1)
 QLD17 (9)13 (8)
 SA19 (10)14 (8)
 TAS11 (6)7 (4)
 VIC56 (30)45 (26)
 WA12 (7)8 (4)
 Not reported0 (0)9 (5)
Years since diagnosed (people with PF) (n=152) (n=134)
 0–112 (8)16 (12)
 2–471 (47)115 (86)
 ≥565 (43)59 (44)
 Don’t know1 (1)3 (2)
Relation of caregiver to person with PF (caregivers) (n=32) (n=38)
 Husband12 (37)11 (29)
 Wife14 (44)15 (40)
 Partner0 (0)1 (2)
 Child5 (16)5 (13)
 Other1 (3)0 (0)
 Not reported0 (0)6 (16)
Health professionalspeciality(>1option allowed) (n=12) (n=89)
 Allied health professional3 (25)15 (17)
 Nurse1 (8)6 (7)
 Researcher1 (8)10 (11)
 Respiratory physician0 (0)38 (43)
 Specialist ILD physician7 (58)12 (13)
 Physicianandresearcher0 (0)2 (2)
 Other0 (0)12 (13)*
Years of experience working in PF (HCPs) (n=89)
 0–5 NA35 (39)
 6–10 NA15 (17)
 11–15 NA15 (17)
 16–20 NA9 (10)
 21+ NA15 (17)
  • Results are expressed in terms of numbers (% of n)

  • NA= not asked

  • *Others include: exercise physiologist (n=1), respiratory attendant/trainee (n=5), registrar (n=3), physician trainee (n=2), clinical psychologist (n=1)

  • ACT, Australian Capital Territory; HCPs, healthcare professionals; ILD, interstitial lung disease; NA, not asked; NSW, New South Wales; NT, Northern Territory; PF, pulmonary fibrosis; QLD, Queensland; SA, South Australia; TAS, Tasmania; VIC, Victoria; WA, Western Australia.