Patients and bereaved family characteristics
| ILD | Lung cancer | P value | ||||
| Total (n) | n (%) | Total (n) | n (%) | |||
| Patients | 177 | 184 | ||||
| Age, years | 76.0 (8.3) | 74.9 (9.7) | 0.24 | |||
| Sex | 0.40 | |||||
| Male | 137 (77.4) | 135 (73.4) | ||||
| Female | 40 (22.6) | 49 (26.6) | ||||
| Institution | <0.001 | |||||
| Seirei Mikatahara Hospital | 75 (42.4) | 115 (62.5) | ||||
| Seirei Hamamatsu Hospital | 37 (20.9) | 19 (10.3) | ||||
| Hamamatsu University Hospital | 33 (18.6) | 18 (9.8) | ||||
| Iwata City Hospital | 32 (18.1) | 32 (17.4) | ||||
| LTOT, yes | 92 (52.0) | 29 (15.8) | <0.001 | |||
| Type of disease | ||||||
| IPF | 78 (44.1) | Adenocarcinoma | 93 (50.8) | |||
| Non-IPF IIP | 58 (32.8) | Squamous cell carcinoma | 35 (19.1) | |||
| CTD-IP | 36 (20.3) | Small cell carcinoma | 25 (13.7) | |||
| CHP | 3 (1.7) | Clinical diagnosis | 16 (8.7) | |||
| Others | 2 (1.1) | Others | 14 (7.7) | |||
| Cause of death | ||||||
| Acute exacerbation | 99 (55.9) | Cancer progression | 180 (97.8) | |||
| Exacerbation of chronic respiratory failure | 49 (27.7) | Treatment-related death | 2 (1.1) | |||
| Respiratory infection | 15 (8.5) | Infection | 1 (0.5) | |||
| Others | 14 (7.9) | Others | 1 (0.5) | |||
| Months from diagnosis to death | 31 (6–61) | 11 (4–28) | <0.001 | |||
| Bereaved family members | 83 | 88 | ||||
| Age, years | 0.53 | |||||
| >49 | 11 (13.3) | 10 (11.4) | ||||
| 50–59 | 15 (18.1) | 14 (15.9) | ||||
| 60–69 | 25 (30.1) | 36 (40.9) | ||||
| ≥70 | 32 (38.6) | 28 (31.8) | ||||
| Sex | 0.25 | |||||
| Male | 23 (27.7) | 32 (36.4) | ||||
| Female | 60 (72.3) | 56 (63.6) | ||||
| Relationship to patient | 0.17 | |||||
| Husband/wife | 51 (61.4) | 51 (58.0) | ||||
| Child of patient | 29 (34.9) | 27 (30.7) | ||||
| Others | 3 (3.6) | 10 (11.4) | ||||
| Frequency of visits during the last hospitalisation | 0.40 | |||||
| Every day | 59 (71.1) | 59 (67.0) | ||||
| 4–6 days per week | 8 (9.6) | 16 (18.2) | ||||
| 1–3 days per week | 13 (15.7) | 11 (12.5) | ||||
| No visit | 3 (3.6) | 2 (2.3) | ||||
Categorical variables are expressed as number (percentage).
Quantitative variables are expressed as mean (SD) or median (IQR).
Fisher’s exact test was used to analyse categorical variables, and Student’s t-test or Mann-Whitney U test was used to analyse quantitative variables as appropriate.
CHP, chronic hypersensitivity pneumonitis; CTD-IP, connective tissue disease-related interstitial pneumonia; ILD, interstitial lung disease; IPF, idiopathic pulmonary fibrosis; LTOT, long-term oxygen therapy; non-IPF IIP, idiopathic interstitial pneumonia excluding idiopathic pulmonary fibrosis.