Table 1

Description of included services and studies

Service descriptionStudies included in the quantitative and thematic synthesis
ServiceCountryConditionsDiscipline/staffContactsDuration (weeks)Author (year)DesignEffectiveness dataExperience data
NQuality (%)NQuality (%)
Ahmadi et al* 57 CanadaLung cancerNursing
Occupational therapy
Social work
Palliative care (doctors)
Oncology (doctors)
2–3 face-to-face
1 class
Phone contact for opioid follow-up if needed
4–6 
Chan et al 58 Hong KongCancerOccupational therapy
Physiotherapy
Home-care nurses
Palliative care (doctors, nurses)
Inpatients: daily face-to-face, then two post-discharge
Home-care: three face-to-face, then six weekly if needed
1+phone calls
4 
Connors et al 48 59 UKIntrathoracic malignancyPalliative and respiratory (physiotherapist)5 face-to-face1–8 Wood et al (2013)48 Qualitative study-9 85
Corner et al 18 34 60 UKLung cancer or mesotheliomaTrained nurse research practitioners working alongside respiratory clinics3–8 clinic visits
3–4 phone calls
8–12 Corner (1996)18 Mixed-methods RCT (pilot)20 88 20 60
Bredin (1999)34 RCT102 81
Douglas et al* 61 UKCancer and non-cancerRespiratory physiotherapist1–3 clinic visits1–4 
Farquhar et al 19 20 41–43 62–65 UKCancer and non-cancerOccupational therapy
Physiotherapy
Palliative care (doctor)
Access to: respiratory medicine, psychologist
2–4 home visits
3–4 phone calls
4–8 Booth (2006)41 Qualitative study 19 85
Farquhar (2010a)42*Qualitative study Missing 40
Farquhar (2010b)43 Mixed methods before-after study (pilot) 13 45
Farquhar (2014)19 Mixed-methods RCT54 100 20 85
Farquhar (2016)20 Mixed-methods RCT79 100 20 80
Goffin et al* 66 CanadaIntrathoracic malignancyOncology (doctor)
Palliative care (doctor)
Respiratory (therapist, doctor)
Nursing
1 clinic visit, follow-up needed
Hately et al 46 UKLung cancer or mesotheliomaClinic run by specialist palliative care physiotherapist3 clinic visits4–6 Hately et al (2003)46 Uncontrolled mixed-method study 30 50
Higginson
et al 21 44 45 47 67 68
UKCancer and non-cancerPhysiotherapy
Occupational therapy
Palliative care (nurse, social worker, doctor)
Respiratory care (doctor)
2 clinic visits
1 home visit
3–4 phone calls
6 Higginson et al (2014)21 Mixed methods RCT82 100 20 70
Gysels et al (2015, 2016)44 45 Qualitative 20 80
Reilly et al (2016)47 Cross-sectional postal survey 25 70
Johnson et al 39 40 UKLung cancerVaried by site; could include
Physiotherapy
Occupational therapy
Oncology (nurse)
Palliative care
1 face-to-face versus 3 face-to-face
Both with one phone call
2–4 Barton et al (2010)39 Feasibility RCT22 92
Johnson et al (2015)40 RCT124 92
Kachuik et al* 69 CanadaLung cancerPhysician
Nurse
Occupational therapist
Respiratory therapist
Social worker
Above with oncology and palliative care expertise
Clinic visits as needed
McMahon et al* 70 IrelandIdiopathic pulmonary fibrosis or COPDAdvanced nurse practitioner led
Physiotherapist
Occupational therapist
4–6 
Pearce et al* 35 UKCOPDCOPD nurse
Physiotherapy Occupational therapy
4 clinic visits4 Pearce et al (2006)35*RCT51 54
Schunk et al 49 71 GermanyCancer and non-cancerPalliative care consultants
Respiratory physicians
Physiotherapists
Access to psychologists, social workers and nurses
2 clinic visits
4 home visits
Phone calls as needed
6 
Scullion et al 72 UKLung cancerOncology (nurse)
Physiotherapy
Occupational therapy
Dietician
4 group sessions4 
Ung et al* 73 CanadaLung cancerMultidisciplinary team, including a ‘clinical champion’, tailored by local services.Precise methodology left to individual cancer centres
Yates et al* 36 37 AustraliaLung cancerNurse led
Based on Corner’s integrated model of dyspnoea
4 face-to-face or phone4 Yates et al * (2007)37 Quasi-experimental (pilot) and RCT (pilot)30 and 57 35–46
Yates et al * (2011)36 RCT144 69
Yorke et al 38 UKLung cancerSpecialist nurses
Physiotherapists
Complementary therapists
2 face-to-face
1 phone call
4 Yorke et al (2015)38 RCT (feasibility)71 92
  • *Abstract only.

  • COPD, chronic obstructive pulmonary disease; RCT, randomised  controlled trial; UK United Kingdom.

  • Quality assessments were completed for studies providing data to the quantitative or thematic synthesis.