Table 1

Demographic characteristics of respondents to elicitation survey and prioritisation survey. Of the 513 responses to elicitation survey, 31 were from respondents who completed the survey more than once (482 individual respondents). Data are presented as number (%) or median (range)

CharacteristicElicitation survey
(n=482)
Prioritisation survey
(n=677)
Male111 (23.0)153 (22.6)
Female315 (65.4)454 (67.1)
Did not answer56 (11.6)70 (10.3)
Median age (range)42 (6–82)41 (6–82)
Category of respondent
Lay persons224 (46.5)314 (46.4)
Person with cystic fibrosis 95 (19.7)121 (17.9)
Parent of person with cystic fibrosis 105 (21.8)160 (23.6)
Family and friends 24 (5.0)33 (4,9)
Professionals211 (43.8)303 (44.8)
Medical doctor 61 (12.7)85 (12.6)
Nurse 22 (4.6)32 (4.7)
Physiotherapist 49 (10.2)65 (9.6)
Dietitian 31 (6.4)41 (6.1)
Pharmacist 6 (1.2)18 (2.7)
Social worker 7 (1.5)16 (2.4)
Non-clinical researcher 10 (2.1)7 (1.0)
Psychologist 21 (4.4)38 (5.6)
Other 4 (0.8)1 (0.1)
Did not answer47 (9.8)60 (8.9)
Country
 UK249 (51.7)474 (70.0)
 USA and Canada91 (18.9)70 (10.3)
 Rest of Europe45 (9.3)42 (6.2)
 Australia and New Zealand35 (7.3)22 (3.2)
 Other5 (1.0)5 (0.7)
Did not answer57 (11.8)64 (9.5)