Results of nominal group proceedings with percentage for acceptance (see online supplement for expanded voting tables)
| Instrument | CTD-ILD PULM+RHEUM+patients with CTD-ILD | IPF PULM+patient with IPF |
|---|---|---|
| Dyspnoea | ||
| MRC Chronic Dyspnea Scale | 7/9+9/12+2/3=75% | 10/11+1/1=92% |
| Dyspnea 12 | 8/10+11/12+3/3=88% | 6/9+1/1=70% |
| UCSD-SBQ | N/A | 7/9+1/1=80% |
| Cough | ||
| Leicester cough monitor | 7/10+10/12+2/2=79% | 8/10+1/1=82% |
| HRQoL | ||
| Short Form 36 | 10/10+11/11+3/3=100% | 8/10+1/1=82% |
| SGRQ | 9/10+9/11+2/2=87% | 8/10+1/1=82% |
| VAS-PtGA | 10/10+11/12+2/2=96% | N/A |
| Lung imaging | ||
| Overall extent of ILD on HRCT | 11/11+9/11+3/3=92% | 10/10+1/1=100% |
| Lung physiology | ||
| Forced vital capacity | 10/10+11/11+3/3=100% | 10/10+1/1=100% |
| Diffusion capacity of lung | 10/10+8/10+3/3=91% | 10/10+1/1=100% |
| Survival | ||
| All-cause mortality | Unanimous agreement | Unanimous agreement |
CTD-ILD, connective tissue disease associated interstitial lung disease; HRCT, high-resolution CT; HRQoL, health-related quality of life; IPF, idiopathic pulmonary fibrosis; MRC, Medical Research Council; PtGA, Patient Global Assessment; PULM, pulmonary specialist; RHEUM, rheumatology specialist; SGRQ, St George's Respiratory Questionnaire; UCSD-SBQ, University of California San Diego Shortness of Breath Questionnaire; VAS, visual analogue scale.