Respondent characteristics
| Factor | |
|---|---|
| LAM, lymphangioleiomyomatosis. | |
| Values are n (%) unless otherwise mentioned. | |
| Tuberous sclerosis | 51 (16) |
| Sporadic LAM | 276 (84) |
| Age in years (mean 46.6 years) | |
| <40 | 88 (27) |
| 40–49 | 112 (34) |
| 50–59 | 91 (28) |
| >60 | 36 (11) |
| Mean time since LAM diagnosis to survey | 7.5 years (range <1–38 years) |
| Currently use supplemental O2 | 102 (32) |
| History of ever having a pneumothorax | 209 (63) |
| Dyspnoea score, mean (SD, range) | |
| Flew | 4.2 (1.4, 1–7) |
| Never flew | 4.8 (1.8, 1–7) |