Appendix: Case scenarios
Case 1: Nocturnal CPAP by nasal mask
| Diagnosis: | Crouzon syndrome | |
|---|---|---|
| Age: | 5 year old male | |
| Suitability for ventilation: | Admitted for planned trial of home CPAP. | |
| Severe obstructive sleep apnoea diagnosed by polysomnography; no improvement after adenotonsillectomy, nasal CPAP trial successful. | ||
| Discharge team: | Tertiary centre paediatrician liaising with local paediatrician. | |
| Research registrar trained parents to use CPAP system. | ||
| Sleep lab staff and ward nurses acting as point of contact. | ||
| Parents. | ||
| Equipment list: | CPAP unit × 1 | |
| Headgear | ||
| Nasal mask | ||
| Tubing and connectors | ||
| Filter strips | ||
| Time to discharge: | Day 1: need for long term ventilatory support identified | |
| Day 2: first discharge planning meeting arranged | ||
| funding requested | ||
| parent training commenced | ||
| Day 4: discharged home | ||
| Follow up: | 2 × 2 monthly sleep studies followed by six monthly follow up overnight admissions. | |
| Approximate costs (excluding hospital | Capital costs | £500 |
| and follow up costs): | Consumable costs | £200 per annum |
| Service costs | £40 per annum | |
| Staffing costs | £0 | |