PT  - JOURNAL ARTICLE
AU  - Sophie Herbert
AU  - Nicola Jane Rowbotham
AU  - Sherie Smith
AU  - Patrick Wilson
AU  - Zoe C Elliott
AU  - Paul A Leighton
AU  - Alistair Duff
AU  - Alan Robert Smyth
TI  - Exploring the challenges of accessing medication for patients with cystic fibrosis
AID  - 10.1136/thoraxjnl-2021-217140
DP  - 2021 Sep 23
TA  - Thorax
PG  - thoraxjnl-2021-217140
4099  - http://thorax.bmj.com/content/early/2021/09/23/thoraxjnl-2021-217140.short
4100  - http://thorax.bmj.com/content/early/2021/09/23/thoraxjnl-2021-217140.full
AB  - Reducing treatment burden in cystic fibrosis (CF) is the top research priority for patients and clinicians. Difficulty accessing medication is one aspect of treatment burden. We investigated this with an online survey available globally for patients with CF and healthcare professionals. Almost three quarters of patients with CF in our survey report difficulty getting repeat prescriptions on time, and most community pharmacists experience interrupted supplies of CF-specific medications. These barriers affect emotional and physical health of people with CF. Two-thirds of people with CF would like to get all their CF medication from one place, their CF centre.