PT  - JOURNAL ARTICLE
AU  - Nicola J Rowbotham
AU  - Sherie Smith
AU  - Paul A Leighton
AU  - Oli C Rayner
AU  - Katie Gathercole
AU  - Zoe C Elliott
AU  - Edward F Nash
AU  - Tracey Daniels
AU  - Alistair J A Duff
AU  - Sarah Collins
AU  - Suja Chandran
AU  - Ursula Peaple
AU  - Matthew N Hurley
AU  - Keith Brownlee
AU  - Alan R Smyth
TI  - The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers
AID  - 10.1136/thoraxjnl-2017-210473
DP  - 2018 Apr 01
TA  - Thorax
PG  - 388--390
VI  - 73
IP  - 4
4099  - http://thorax.bmj.com/content/73/4/388.short
4100  - http://thorax.bmj.com/content/73/4/388.full
SO  - Thorax2018 Apr 01; 73
AB  - There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on 10 research priorities which will be attractive to funders.