PT  - JOURNAL ARTICLE
AU  - Andrew Bush
AU  - Gisela Anthony
AU  - Angelo Barbato
AU  - Steve Cunningham
AU  - Annick Clement
AU  - R Epaud
AU  - Carlee Gilbert
AU  - Lutz Goldbeck
AU  - Kai Kronfeld
AU  - Andrew G Nicholson
AU  - Nicolaus Schwerk
AU  - Matthias Griese
AU  - on behalf of the ch-ILD collaborators
TI  - Research in progress: put the orphanage out of business
AID  - 10.1136/thoraxjnl-2012-203201
DP  - 2013 Oct 01
TA  - Thorax
PG  - 971--973
VI  - 68
IP  - 10
4099  - http://thorax.bmj.com/content/68/10/971.short
4100  - http://thorax.bmj.com/content/68/10/971.full
SO  - Thorax2013 Oct 01; 68
AB  - Paediatric interstitial lung disease (ILD) is rare and diverse, meaning no single centre will see sufficient children to perform the studies needed to make progress. This EU FP-7 grant will standardise the evaluation of these rare conditions by establishing pan-European multidisciplinary expert panels and establish consensus on treatment protocols and standard operating procedures across Europe. We will work with patient groups to determine optimal treatment end-points and biomarkers. A biobank will be established as a Europe-wide resource for mechanistic studies. Ultimately we aim to do the first randomised controlled trial of a pharmacological treatment in paediatric ILD.