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‘Call me maybe’ – Virtual management of respiratory disease
P238 Longitudinal observation of patient engagement in an interstitial lung disease (ILD) home monitoring program
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  1. M Naqvi1,
  2. S Lines2,
  3. R Borton3,
  4. W Adams4,
  5. J Dallas1,
  6. J Mandizha2,
  7. H Almond5,
  8. M Hunt6,
  9. C Edwards3,
  10. M Gibbons2,
  11. AM Russell2,
  12. A West1
  1. 1Guy’s and St Thomas’ NHS Trust, London, UK
  2. 2Royal Devon University Hospitals NHS Trust, Devon, UK
  3. 3patientMpower, Dublin, Ireland
  4. 4Action for Pulmonary Fibrosis, Peterborough, UK
  5. 5Patient Representative, Devon, UK
  6. 6Patient Representative, London, UK

Abstract

Purpose To quantify patient engagement with a home-monitoring program designed to support clinical care of patients with interstitial lung diseases (ILD) in two NHS Trusts, in the South of England.

Methods Patients with ILD who met eligibility criteria were approached to participate in a home monitoring program using a patient-facing application with a Bluetooth-connected spirometer and oximeter. Members from both trusts technical partner, UK patient driven charity and patient representatives formed the study steering group, overseeing the project and integrating patient and clinician feedback. Consenting patients were instructed remotely on the use of the application and devices and were asked to record their measurements (1 forced expiratory manoeuver & 1 oximetry reading) once weekly for one year. Patient-Reported Measures (PRMs) were completed electronically once quarterly. Data recorded via the app were visible to the patient and to the healthcare providers in real time via a secure browser-based portal. Alerts to automatically detect significant changes in individual’s physiological values (e.g. ≥10% ↓FVC) and to alert the healthcare team were activated and responded to.

Results Patients (n=190) were recruited and 178 patients successfully downloaded the application and recorded ≥1 measurement with the connected spirometer. 168 patients recorded ≥1 oximetry. By 31-May-2023 109 patients had recorded home spirometry for ≥6 months. Patients provide spirometry on median of 73% (n=19) weeks and oximetry 69% (n=18) weeks. 130 patients provided response to a patient feedback questionnaire a sample response is shown in figure 1.

Conclusion Home monitoring is acceptable for many patients as illustrated by the high engagement in their monitoring activity. A high proportion of patients reporting home spirometry find it easy or very easy to use. Further work is needed to assess how a home monitoring program best fits into delivery of care for ILD patients and this is being evaluated in this program.

Please refer to page A293 for declarations of interest related to this abstract.

Abstract P238 Figure 1
Abstract P238 Figure 1

Patient feedback response

https://doi.org/10.1136/thorax-2023-BTSabstracts.388

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