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Orphan lung disease
Original article
Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD)

Authors

  • Laura Behan Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK School of Applied Psychology, University College Cork, Cork, Ireland PubMed articlesGoogle scholar articles
  • Margaret W Leigh Department of Pediatrics and Marsico Lung Institute, University of North Carolina School of Medicine, Chapel Hill, North Carolina, USA PubMed articlesGoogle scholar articles
  • Sharon D Dell Division of Respiratory Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada Department of Pediatrics, University of Toronto, Toronto, Ontario, Canada Institute of Health Policy, Management and Education, University of Toronto, Toronto, Ontario, Canada PubMed articlesGoogle scholar articles
  • Audrey Dunn Galvin School of Applied Psychology, University College Cork, Cork, Ireland PubMed articlesGoogle scholar articles
  • Alexandra L Quittner Department of Psychology, University of Miami, Coral Gables, Florida, USA PubMed articlesGoogle scholar articles
  • Jane S Lucas Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK Academic Unit of Clinical and Experimental Sciences Faculty of Medicine, University of Southampton, Southampton, UK PubMed articlesGoogle scholar articles
  1. Correspondence to Dr Jane S Lucas, Faculty of Medicine, Mail Point 803, University Hospital Southampton, Southampton SO16 6YD, UK; jlucas1{at}soton.ac.uk
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Citation

Behan L, Leigh MW, Dell SD, et al
Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD)
Thorax 2017;72:832-839.

Publication history

  • Received August 29, 2016
  • Revised January 26, 2017
  • Accepted January 31, 2017
  • First published February 28, 2017.
Online issue publication 
August 21, 2017

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Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/