Characteristic | Elicitation survey (n=482) | Prioritisation survey (n=677) |
Male | 111 (23.0) | 153 (22.6) |
Female | 315 (65.4) | 454 (67.1) |
Did not answer | 56 (11.6) | 70 (10.3) |
Median age (range) | 42 (6–82) | 41 (6–82) |
Category of respondent | ||
Lay persons | 224 (46.5) | 314 (46.4) |
Person with cystic fibrosis | 95 (19.7) | 121 (17.9) |
Parent of person with cystic fibrosis | 105 (21.8) | 160 (23.6) |
Family and friends | 24 (5.0) | 33 (4,9) |
Professionals | 211 (43.8) | 303 (44.8) |
Medical doctor | 61 (12.7) | 85 (12.6) |
Nurse | 22 (4.6) | 32 (4.7) |
Physiotherapist | 49 (10.2) | 65 (9.6) |
Dietitian | 31 (6.4) | 41 (6.1) |
Pharmacist | 6 (1.2) | 18 (2.7) |
Social worker | 7 (1.5) | 16 (2.4) |
Non-clinical researcher | 10 (2.1) | 7 (1.0) |
Psychologist | 21 (4.4) | 38 (5.6) |
Other | 4 (0.8) | 1 (0.1) |
Did not answer | 47 (9.8) | 60 (8.9) |
Country | ||
UK | 249 (51.7) | 474 (70.0) |
USA and Canada | 91 (18.9) | 70 (10.3) |
Rest of Europe | 45 (9.3) | 42 (6.2) |
Australia and New Zealand | 35 (7.3) | 22 (3.2) |
Other | 5 (1.0) | 5 (0.7) |
Did not answer | 57 (11.8) | 64 (9.5) |