The worst things about having COPD | Breathlessness, unpredictable day to day variation in symptoms, lack of mobility, impact on daily activities/exercise, weight gain/loss, always tired, frightening/panic, embarrassing, shakes confidence, lots of other medical complains, confusion around medications |
Patient priorities for COPD research | Consistency in treatment between GPs/hospital doctors, encouragement for patients to manage own condition, effective inhalers, something better than inhaler to improve survival/cure, new treatments, new treatments for COPD patients with other conditions (eg, diabetes) |
Barriers to patient involvement in research | Fear, lack of education |
Recruitment ideas | Leaflets through pharmacies for patients receiving inhalers, expert patients assisting with recruitment |
Measuring benefits of treatment | Three most important potential benefits: prolonged survival, increased activity, reduction in hospital admissions |