Editorial
Quality of life in cystic fibrosis
| The first 150 words of the full text of this article appear below. |
In recent years the role of behavioural and psychological variables in the management of patients with cystic fibrosis has been noted.1-3 This interest has grown from the observation that improved diagnosis and treatment mean that many patients can now anticipate burdensome daily management routines continuing for some decades. Recent studies in this and other publications have included demonstrations that the health related quality of life (HRQOL) of adults with cystic fibrosis is in some respects impaired,1 3 and that HRQOL is a valuable outcome measure in clinical trials.4 5 Such findings are in contrast with earlier literature which tended to shown little evidence of psychosocial impact in children6 and adolescents7 with cystic fibrosis. There is, however, an important distinction between the psychosocial outcomes identified in the 1980s, often using instruments intended to detect psychopathology, and more recent conceptualisations of HRQOL.
HRQOL is a multidimensional construct encompassing a range of impacts
including physical,
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